The Pioneers Recruitment Registry is a collaborative initiative sponsored by researchers at the University of Kansas Medical Center (KUMC) and other regional hospitals and universities. These institutions have joined together in a research network called Frontiers: The Heartland Institute for Clinical and Translational Research. Frontiers researchers conduct research to make new discoveries and promote the health of all people. Research studies cover a wide range of topics: from testing new drugs that might help someone with a disease, to asking you about your daily activities or your opinions about health.
The purpose of the Pioneers registry is to match people in the community who are interested in participating in research with appropriate research studies. The Pioneers survey may be completed online or on paper, and individuals will be asked to provide contact information and information about their general health and medical diagnoses. Answering the basic survey questions will help researchers identify potential candidates for these research studies.
The Pioneers registry is available as a resource to researchers from any of the academic, health system, or community regional partners of Frontiers: the Heartland Institute for Clinical and Translational Research network. All campuses of the University of Kansas are included in this network, including Kansas City and The University of Kansas Hospital, and researchers who work in Lawrence, Wichita, and Salina. Other network partners include the University of Missouri-Kansas City, the Kansas City University of Medicine and Biosciences, Saint Luke’s Health System, Children’s Mercy Hospital and Clinics, Wesley Medical Center and Via Christi Health System, and several other health system and community partners (see full list).
Researchers must have their research study approved by an institutional review board and a Pioneers registry oversight committee. When approved, the researcher will receive only the name and contact information of people who meet their study criteria. Researchers may contact these people to see if they are interested in the study and ask questions to see if they are eligible.
Signing up for the Pioneers registry does not mean that individuals are consenting for a specific research study.